I
recently finished up an internship at an adult day program. This is
where folks who have extreme disabilities can go during the week to
socialize, get stimulated with different activities and work. Some
adults have a developmental age of as low as 4, some are confined to a
wheelchair, twisted up by cerebral palsy. Some are blind and can't
speak, some can only squeal. I had never been exposed to such a
population in all of my 53 years. I have to admit it was a shock at
first.
The
first part of my internship was working people with cerebral palsy. All
men from ages 30 to 70, they are there during the week to socialize,
but more importantly to be freed from the prison that has contained them
all their lives. This department, led by a very enthusiastic and
creative woman, endeavors to give them ways to communicate and express
themselves. Sharp minds, but with bodies that don’t cooperate, my first
experience was to become an instrument for Dave. He has an artist’s eye
and has created paintings through other individuals using A.R.T.
(Artistic Realization Method). Designed by a visiting artist, Tim Lefens,
years earlier, it is a way for a person to express themselves in an
artistic way. The “instrument” or in this case me, must set aside all
preconceived ideas, all judgments about color and composition, and be a
blank intuitive receptor to the artist. The artist, may if possible
verbally direct their “instrument” or can use a laser to point to what
color, where to put a line, whether the curve of a line is the right
shape, etc. It is a very slow process that requires a lot of intuition,
patience and an ability to connect to the person who has very little to
communicate with. This could be done with photography, graphics or paint
and using traditional methods or computer technology.
Dave
could verbally communicate, but he was difficult to understand. (think
Christie Brown in “My Left Foot”) So thankfully, we were moved to a
quieter room and in no time, we were communicating. Dave has an artist's
eye and a love of Broadway, so we were going to be painting Zazu, from
the Lion King musical. His future intent was to create a narrative to
reenact the musical for the rest of the group who had never seen it. We
worked from a photograph in the program as a reference. In another post I
will share the entire process with photos of his works. But for now I
will share my emotional response. With any connection there is mutual
exchange. Nine times out of ten when you place yourself in a situation
where you think of the people as “less-than” and you are there to
facilitate change, you are the one who is changed. And I certainly have
been changed. Being with folks whose every day existence is a challenge,
and they are completely vulnerable and dependent on others, makes you
grateful for things you take for granted to be sure. But there is a
deeper response that transpires. A surrender to self and all
preconceived ideas and drives. If you are to be someone's instrument,
and be a good one, you must do this. Every curve every line every shape
must be that person's, not your own.
I
saw the Lion King musical so Dave and I had an instant connection. When
you give yourself over to the process, you would be surprised how
quickly you adapt, and there is a kind of rhythm that happens. Once you
blend a certain way, you can say, “like this?” and you build on that.
However what is extraordinary are the surprises. Like any of us, our
mind is on many things. For Dave it takes extreme concentration to form a
sound to get a word out. I would find that what he was saying was not a
direction toward the painting, sometimes it was a joke. Or sometimes it
was something about his life.
There
was a point in the painting where we worked on a tool, so that he could
paint part of it himself. He said, “I don't want it to look
ridiculous”. Understanding his own limitations, I assured him it
wouldn't. I am so grateful for having the opportunity to get to know
Dave, and I hope (after releases are signed) to be able to share his
artwork with you!
My next experience
was in another department, under the tutelage of the Fine Arts
Coordinator. His job was to create adaptive tools and devise ways to
create sellable works of art. The Adult Day Program is structured in
modules, one of which is “work”. A way for the clients to earn a
paycheck. Higher functioning clients are in the workshop; an assembly
line type atmosphere packing jelly or stuffing cotton in gift boxes.
Others do similar things in a module, not all day. Still others create
art to be put up for sale in the spring art show. That is one of the
Fine Arts Coordinator's (FAC) jobs. Sometimes a client will draw
something that is encouraged to be painted. So the FAC projects that on a
canvas for the client to trace and then to paint. Sounds pretty
straight forward right? Not so. Most of these folks are highly
temperamental, many with dual diagnosis or short attention spans. If we
could keep them engaged for 45 minutes to an hour, that was a real
accomplishment. Others in wheelchairs, the A.R.T. Technique was used,
but often had to be simplified, like cutting out shapes and having them
point with a laser to what shape to use and what color. It's all about
giving them choices, and keeping them from becoming “institutionalized”.
A good percentage of their lives are determined by their caregivers and
facilitators. The art department gives them freedom to make decisions
and control their world. I was able to work with the same individuals
during the course of the rest of my stay. It was wonderful to have them
look forward to our activities. Each person was intriguing in their own
way, but one in particular stole my heart. She ran up and gave me a hug
the first day. I was determined to work with her, but I only got her to
participate once. She was contented to watch when the two other ladies
that I worked with did their activities. The longer I allowed her to
just be an observer, the more she would seek me out and make a gesture
about my shoes or how cold it was outside. Then she started pointing out
colors and giving sign language for the first letter in the color name
while saying it. I would praise her for getting it right, and she did
get it right most of the time. She then would sign the first letter to
people's name. By the end I asked her the first letter of each of 3
names and pointed out that together it spelled C-A-T. Did I practice art
therapy with her? Not directly. But this is a by product of the action.
Though she did not participate in the art itself, it became a topic of
conversation, as to whether I would do it that day, and gave her reason
to spend time with myself and the other two participants. Talk therapy,
or good old fashioned conversation, establishing camaraderie and trust
is a big part of any therapeutic relationship. As for the art that the
others did, each was differently skilled. One was very orderly and
relatively adept at the motor functions I was asking her to do. The
other one may not have always understood what I was saying, but had a
definite aesthetic sense. None of these individuals spoke very much, and
when I tried to have a conversation with them, it had to be brief
simple questions. However, what we shared in that 45-60 minutes I
believe gave them a sanctuary of freedom to express themselves the way
they wished. I, on the other hand got something greater, which is once
again, love is the beacon by which we can navigate and communicate
through any presumed divide.